Here is the latest update, taken from an email that Dru sent last night:
The update on Peyton today really isn't too good. Not horrible, but as always surprises in the midst.
The good news is that she only got nauseous a little bit today. When she threw up, it was all mucous (nothing from the belly). Her hematocrit level is a bit higher also, which we contribute to all of the lovely skin to skin time Krissy and she have been having.
On the not so good side is that her liver is still not looking any better. Her bilirubin is still about twice where it should be. She will have another abdominal scan tomorrow to see if they can pinpoint any problems. She needs to get this under check and fast so that they can continue the treatment. This is the most worrisome right now as we don't want her to have liver failure. We want her get back to the treatment she needs.
She is also going to have another spinal tap Mon or Tue as well as a possible bone marrow testing. Also by Tue is when her treatment would start back up with the Vincristine (chemo) if her liver allows.
If that isn't a full enough schedule, she will be having a follow up scan on her head to make sure there aren't any other bleeds.
Oh wait there is more....because her third blood culture came back positive for the staph presence probably in the actual broviac (sp?) line, that was surgically placed only a few days ago, they are going to want to remove it tomorrow and put in a different line in her arm or leg. This one would be a step down from the current one because it won't have two access points like the current one to run two IVs at once and will be less stable (doesn't last as long as the current and will need to be replaced sooner). This means another intubation which she was just finally recovering from (hoarseness and reluctance to take things by mouth).
Peyton is being stubborn with the breastfeeding and frustrating Krissy also as she is having to take most of her milk by feeding tube. We think it might be that she is just not able to get into a rhythm between the sores in her mouth/throat, going from nipple to bottle, as well as the nasty medicine for her liver, the nausea, and putting on restrictions every now and again from feeding :( poor girl.
Monday, September 22, 2008
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4 comments:
It is so hard just to read this, I can't imagine what it's been like for Krissy, Dru and their families. My heart goes out to all of you.
Hi, Krissy, Dru, Katie,Mike, Liz and Gene! This is not fair, I'm sitting at this library computer with weepy eyes, but so glad I could finally see Peyton working so hard at what she must right now. The pictures are just beautiful, she is stunning! You are all heroes to us even from afar here in RI. Keep up the battle and know you are all in our thoughts and prayers each day.
Frank and Maryal
Kate, Mike and the girls, thank you so much for making this website so we know Peyton's progress. Krissy, Dru n Peyton I love you and I'm praying for you.
You are all in our thoughts and we have an army of people praying for baby peyton, krissy, dru and extended family. Peyton is just beautiful. Thank you for sharing her with all of us and for keeping us informed.
Mary and Bill T.
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