Saturday, September 20, 2008

I just got an update from Krissy, sent to me via email last night (or, I should say this morning), as she only hit the sack after 1 am. Anyway, here is the medical update.....Peyton had to have a feeding tube inserted up her nose and into her stomach because she has not been taking enough by mouth. My sister has been breastfeeding her, but because of all the poking, prodding and medications that she has been having to take orally (against her will most of the time) she has developed an oral aversion where she is afraid of anything coming near her mouth. So the tube will guarantee that she will get enough to eat. The doctors have taken Peyton off the tpn (her nutrients she was receiving via IV), because there was a fear that this tpn has been contributing to her high bilirubin levels. Peyton was also diagnosed hypothyroid yesterday. This has nothing at all to do with her leukemia, but has been wreaking havoc on her liver unfortunately (I guess because it messes with your overall metabolism). As a result, the doctors have to hold off on Peyton's chemo until they can get her liver function up to par. So we are really hoping that she turns around and gets better with her liver function. PLEASE PRAY, EVERYONE!!!!Peyton's spleen is currently 5 times the size it should be, but when she was born it was 10 times too big, so she is making progress. On a good note, Peyton tested negative for the RSV which is a respiratory virus they were concerned she might have (because they saw fluid in her lungs on x-ray). However, Peyton does have the staph infection (at her wound sites, from where her Broviac- main line- was inserted last week). Overall, Peyton had an alright day yesterday, though she was throwing up at night, which made my sister, Dru and everyone else sad and frustrated because she threw up her Actogal (the medication for her liver), right after having received it via the feeding tube... But she didn't through up for long, and settled down pretty quickly.

My sister told me that she has been incredibly touched by everyone's thoughtfulness, prayers and generosity during this tough time. Unfortunately, it is still really difficult for Krissy and Dru to talk to people about Peyton without breaking down (which is more than understandable), but just knowing that everyone is there for them when they are ready is what will help get them through this. So, for all you caring family and friends, here is a sincere "Thank you."

2 comments:

jenn said...

Kate, Thanks for keeping us up-to-date with Peyton's condition. You are a great sister to Kristen.

Sincerely, (Friend of Kristen and Dru), Jenn C

Anonymous said...

Dear Katie:

Peyton is a beautiful baby. Debbie, Matt and my prayers are with all of you! I spoke to Krissy when she first got home and have been in contact with your Mom and Dad on a regular basis

I wish I could be with all of you!

I am going to say a special prayer for Peyton, Krissy and Dru along with your whole family when I go to temple on Rosh Hashanna!

I'm always thinking of everyone and our prayers are with you all!

Love,

Marilyn, Debbie and Matt